Caregiver Support
Parkinsons Disease.net-Caregivers Role
As a caregiver or care partner, you may be the spouse, sibling, child, or other loved one of someone with Parkinson’s disease (PD). Caregiving is defined as everything we do to assist a friend or relative due to that person’s illness or disability, as well as what we do for our own health. While PD is unexpected and you didn’t choose the role of caregiver, it doesn’t mean you can’t be good at it. Take stock of your natural strengths and how they can be used in caregiving.
Parkinson.org - Balancing Life and Caregiving
Life does not stop with a Parkinson’s diagnosis – but things change. Sometimes the person with Parkinson’s and the primary caregiver isolate themselves, withdrawing gradually from participation in the community and prior social life. This can happen for a variety of reasons: the Parkinson’s partner’s preference that “only s/he can meet my needs”; the caregiver’s belief that no one else can adequately provide care or should be saddled with the burden; or the financial pressures of hiring help to facilitate social involvement. Whatever the reason, don’t let it happen to you!
The Parkinson’s Caregiver Role
The role of a caregiver is usually one that a person must take on without any prior warning. It is a major change to anyone’s lifestyle. A caregiver must be on-call twenty-four hours a day. They must always be on their toes. They must be organized, well informed and watchful. They must be very patient, helpful and warm-hearted towards their loved one’s changing physical/mental condition. All this is difficult to master. A caregiver must also have inner strength and determination to carefully balance the new demands that lie ahead.
We hope the information in this section helps define the role of caregiver and sheds light on the importance of this role. It takes a special kind of person to care for an ill or disabled loved one
Welcome to the Parkinson's disease Caregiver Forum
Here, we discuss Parkinson's disease related topics in hopes of improving the quality of life for both patients and their caregivers.
Please keep in mind the nature of the forum is "public" — (anyone can read these postings) — but...posting and replying requires that you be a registered user.
Parkinsonsdisease.net - Caregivers managing care in mid-stages
As a chronic, progressive condition, the symptoms of Parkinson’s disease (PD) worsen over time. However, PD is a highly unique disease, and no two patients have the same experience. Not every person with PD experiences the same symptoms, and the severity of symptoms differs among people living with PD. Likewise, the caregiver/care partner’s experience also varies, depending on the needs of their loved one.
Members of your community can quickly find ways to help, and Lotsa will send reminders and help coordinate logistics automatically so nothing falls through the cracks.
Advice for Caregivers
Whether you live with a Parkinson's patient, or help a family member or friend with Parkinson’s often, you likely face some of the issues associated with "caregivers."
Caregiver Action Network
Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
Family Caregiver Alliance
For 40 years Family Caregiver Alliance (FCA) has supported and sustained the important work of families and friends nationwide who care for adult loved ones with chronic, disabling health conditions.
AARP - Family Caregiving
Taking care of those who need you is one of the most important roles you’ll play. We’re here to help.
Lotsa Helping Hands Community
With the Help Calendar, you can post requests for support - things like meals for the family, rides to medical appointments, or just stopping by to visit.
Members of your community can quickly find ways to help, and Lotsa will send reminders and help coordinate logistics automatically so nothing falls through the cracks.
As a caregiver or care partner, you may be the spouse, sibling, child, or other loved one of someone with Parkinson’s disease (PD). Caregiving is defined as everything we do to assist a friend or relative due to that person’s illness or disability, as well as what we do for our own health. While PD is unexpected and you didn’t choose the role of caregiver, it doesn’t mean you can’t be good at it. Take stock of your natural strengths and how they can be used in caregiving.
Parkinson.org - Balancing Life and Caregiving
Life does not stop with a Parkinson’s diagnosis – but things change. Sometimes the person with Parkinson’s and the primary caregiver isolate themselves, withdrawing gradually from participation in the community and prior social life. This can happen for a variety of reasons: the Parkinson’s partner’s preference that “only s/he can meet my needs”; the caregiver’s belief that no one else can adequately provide care or should be saddled with the burden; or the financial pressures of hiring help to facilitate social involvement. Whatever the reason, don’t let it happen to you!
The Parkinson’s Caregiver Role
The role of a caregiver is usually one that a person must take on without any prior warning. It is a major change to anyone’s lifestyle. A caregiver must be on-call twenty-four hours a day. They must always be on their toes. They must be organized, well informed and watchful. They must be very patient, helpful and warm-hearted towards their loved one’s changing physical/mental condition. All this is difficult to master. A caregiver must also have inner strength and determination to carefully balance the new demands that lie ahead.
We hope the information in this section helps define the role of caregiver and sheds light on the importance of this role. It takes a special kind of person to care for an ill or disabled loved one
Welcome to the Parkinson's disease Caregiver Forum
Here, we discuss Parkinson's disease related topics in hopes of improving the quality of life for both patients and their caregivers.
Please keep in mind the nature of the forum is "public" — (anyone can read these postings) — but...posting and replying requires that you be a registered user.
Parkinsonsdisease.net - Caregivers managing care in mid-stages
As a chronic, progressive condition, the symptoms of Parkinson’s disease (PD) worsen over time. However, PD is a highly unique disease, and no two patients have the same experience. Not every person with PD experiences the same symptoms, and the severity of symptoms differs among people living with PD. Likewise, the caregiver/care partner’s experience also varies, depending on the needs of their loved one.
Members of your community can quickly find ways to help, and Lotsa will send reminders and help coordinate logistics automatically so nothing falls through the cracks.
Advice for Caregivers
Whether you live with a Parkinson's patient, or help a family member or friend with Parkinson’s often, you likely face some of the issues associated with "caregivers."
Caregiver Action Network
Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
Family Caregiver Alliance
For 40 years Family Caregiver Alliance (FCA) has supported and sustained the important work of families and friends nationwide who care for adult loved ones with chronic, disabling health conditions.
AARP - Family Caregiving
Taking care of those who need you is one of the most important roles you’ll play. We’re here to help.
Lotsa Helping Hands Community
With the Help Calendar, you can post requests for support - things like meals for the family, rides to medical appointments, or just stopping by to visit.
Members of your community can quickly find ways to help, and Lotsa will send reminders and help coordinate logistics automatically so nothing falls through the cracks.